Erin has had a good year – she’s a chatty, bossy and cheeky 3 year old. December has ended well with a wonderful Christmas at home with her family. Erin has enjoyed advent fun too – despite having chicken pox and being unable to go out for two weeks whilst the spots scabbed over.
Although she has had a Winter full of different viruses – we have avoided an overnight hospital stay, which has been lucky. Both Lee and I have noticed a decline in Erin’s activity levels, and she gets particularly out of breath and cyanosed on exertion that she would’ve coped okay with previously. She can’t climb the stairs at home without being really quite ‘puffed’ out once she’s at the top of the stairs.
Erin’s cardiologist has put her forward for a cardiac catheter procedure in the new year – as the decline in exercise tolerance and her SATS being lower may mean we are heading towards the third stage surgery – the Fontan. So I’m sure we will be blogging about that once we know more. I’m feeling slightly apprehensive as we’d all got used to ‘waiting’ for the 3rd stage, and to hear it’s possibly looming nearer gives me butterflies.
Lee, Noah, Erin and I have had a relaxing (ok, noisy!) but chilled out Christmas. We’ve enjoyed being at home and going for buggy walks around the local area – both Noah and Erin have loved seeing all the Christmas lights on houses. Erin is taller and heavier now (she’ll be 4 in April 😊) and now she is using the buggy much more (about 90% or more) I have found that it’s quite a bit harder to push, manoeuvre and bump up and down kerbs etc. I’ll be making enquiries as to special needs pushchairs / wheelchairs once we see the physio team or the pediatrician.
Whatever the year ahead holds for Erin, I know that our headstrong girl will give it her all. With very best wishes for a healthy, happy new year from all the Stangroom’s.